Posts Tagged Celiac

Our Celiac Kid is THE Celiac Kid

Posted in Will | 1 Comment »

We got some great news this month when a special book arrived in the mail.

Eric’s Mom Stephanie and sister Anneliese have been hard at work. They self-published an adorable book staring our very own Will. Written in his voice it tells the story of being a kid with Celiac. We love that it focuses on the fact that he is a regular kid in so many ways – and this is just one part of him.

We tore into our package! Both Will and Walker were thrilled with the books and bookmarks. And honestly it such a treat to see both my kids names in the dedication.

Both boys took copies to school and their teachers read them in class. I cannot tell you how special this is – the more people understand Celiac the more “regular” Will becomes in the eyes of his peers.

Thank you Grandma Steph and Aunt Ali!

For those of you looking for your own copy you can find it on Amazon HERE! And you can check out the other two books they’ve written/illustrated!

2 by 2

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Today, Wednesday, we had our follow-up appointment with Will’s Celiac Doc. It has been six months since his biopsy confirming his diagnosis. We’ve noticed that he has outgrown most of his pants, by length, so we were hopeful that he was on the up & up. Or up and out in terms of height and weight.

We got great news! In the last six months Will has gained almost 2 lbs (1.7 to be exact) and grown almost 2 inches!!! He moved from the 5th percentile to the 10th percentile in weight, and 5th percentile in height to 25th!

This means all the changes in our eating habits have paid off. Those peanut butter rice cakes, brown rice quesadillas, GF pancakes, quinoa lasagna, and all the other good food we’ve been eating has made a difference.

Doctor Berry expects that Will will always be thin given his stature, but he thinks he’ll put on some more good weight over the next couple of years.

Will was grateful for the good news – which for him was that he did not have to have a shot!

A high horse…

Posted in Momma B, Will | 3 Comments »

How would you feel if you heard that everyone in your parents bought each of your siblings a new car…but not you?

What if you walked into a room where everyone was laughing, only to stop when you arrived, and everyone refusing to say what the laughter was about?

What if you found out that everyone, but your child, in preschool was given a gift?

No one likes the ‘everyone but you’ scenario. Unless you are part of the everyone. And even then it is still a little uncomfy. No one likes being excluded. I would also venture to guess most people don’t like to purposefully exclude people.


I got a call while at the gym from Will’s preschool teacher, Mrs. W. One of the other students in class had brought Rice Krispy Treats for the class. Mrs. W wanted to make sure he could have one. Rice Krispy treats sound guileless but they are made with malt flavoring, which is made from barely, which means it is a big fat NO for Will.

While I was thrilled that the teacher called to ask permission, I found myself focused on the frustration that I felt. The frustration seems to stem from two places:

(a) that my child has a world of necessary ‘nos’. I am not against saying no (I’m actually quite fond of boundary setting) but rather that these ‘nos’ are not everyone’s. Not every parent has to say no to Rice Kripsy treats while most say an adamant no to a child’s suggestion of putting a fork in a socket. You get the drift…

(b) that even though I provided a note to each parent, asking them to call me if they were bringing a treat to class, this somehow slipped through the cracks. Situations like this do not need to happen. Had I known I could have easily whipped up some GF Rice Krispy treats so that Will could have one too. So he wouldn’t be left out…

Even I type I realize that I am not making considerations for the other parent. Maybe they never got my note, maybe they forgot my number, or maybe they looked on the box, saw that it didn’t list wheat, and figured it was safe!

I guess, in the end, my frustration really lies with the fact that this exclusion is just the first. It won’t really matter whose fault it is, or what the actual exclusion is…rather that just by nature of Will having Celiac it will happen.

Feeling frustrated and out-of-control doesn’t really work for me. Let’s turn my frown upside down, shall we say! I’m not asking for pity…I’m going to hope that my post today has inspired those of you who read it to put yourself in someone else’s shoes. Make yourself more aware of food allergies and intolerances that surround you. Don’t judge (what’s to judge!) or ignore…but figure out how you can work with them. Most parents don’t expect you to work harder (i.e. making gluten-free food) but rather to just give them a heads-up.

Even if it is not with food allergies – there are lots of ways that we exclude others, without even realizing it. Take a second look at something you think you saw right the first time.

(I’m stepping off my high horse now…at least for the time being!)